Anarazell Joy turns 4 days old today...I feel like I have lived a lifetime, or several since Friday. I don't think the mind is supposed to go through so many emotions so fast.
We go to school with a couple whose family lives here in Waukesha and they have opened their house up to us indefinitly. Pretty awesome. In fact some people were talking to them about trying to find other arrangments for us, and this couple, Tom and Grace, said, "No, they are staying with us...for as many years as they need to." So we will be here for awhile. It is amazing how God has worked in so short of time, and how the Christian body has wrapped us in love...and food.
Do we have the food!!! Such a blessing.
Tom and Grace have loaned us their cell phone for the duration as well. The only time we won't have it on is when we are in the NICU with our baby. Feel free to call us. We might not be able to talk for too long, and depending on what part of the day you catch us, you might have to listen to some tears as well, but we would love to hear from people. 619-929-4591 And please call. None of this, "I didn't want to bother you..."
If you want our address, you can e-mail me, but I don't want to post that on the web like this...since it isn't even our house and all...
We had a pretty discouraging day today. You can really pray for us. They were trying to feed her with a stomach tube, but she isn't digesting the milk. They are trying to get her off the breathing machine, and have her breath on her own...so they turned the machine down to 10 breathes per minute, but then her co2 shot through the roof. Pretty much sugesting that she isn't breathing on her own at all...
When she was first admitted, she was breathing on her own, but having alot of seizures so they pumped her full of medication to stop those. Well, in doing so, she stopped breathing as well. So as they wait for the medication to leave her body they are hoping, and we are praying, that her breathing startes up again, but the seizures don't.
Her MRI and CAT scans show that her brain is underdeveloped. It looks like, and reads like a baby that is only 28 weeks in the womb.
So is she not breathing, swallowing, digesting because the medication has her so tired or because her brain is small? Will, she grow out of it in time? Will her brain grow from here on? All questions that we are asking, but no one knows the answers. Well, no one here on earth. God does.
Had a meeting today with the doctors and one again tomorrow, just to keep lines of communication open.
Thought that went through our heads today:
We now hate the smell of hospitals. But we love them, because they are the only smells that we have to associate with our baby.
I plan on posting some pictures tomorrow...
Tuesday, November 29, 2005
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1 comment:
Hey Guys,
Thanks for the updates and know that we are praying for you often.
Love the Porters!
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